Healthcare worldwide generates thousands of exabytes of data every year, worth billions. Volumes are set to increase as new sources of data - genomics, lifestyle, wearables – are starting to enrich medical records. Ready access to large quantities of high quality, well-structured data will be key to delivering the 21st Century vision of outcome- and data-driven, precision health and care. However, trust is a key condition to unleash the power of data. Covid-19 has led to a relaxation of rules around data sharing in some countries and increased public buy-in for the use of health and care data to inform decisions about their own care, but also for the greater good. Post pandemic, how will health systems capitalise on this shift in attitude to turn a larger volume of data into tangible service improvement and life-changing healthcare and research? Convening experts from across Europe, this session will delve into the risks, benefits and controversies of data sharing and highlight successful initiatives to win public buy-in over the use of data. At the heart of this session, is the concept that data is for the asking, not for the taking and working with the public as key stakeholders is essential.
Leading a Data Revolution in Healthcare - Getting the Public Onboard
June 8, 2021
13:15 - 14:00